Cynulliad Cenedlaethol Cymru |
National Assembly for Wales |
Bil Awtistiaeth (Cymru) drafft |
Draft Autism (Wales) Bill |
Arolwg Ar-lein DAB113 |
Online Survey DAB113 |
Ymateb gan Cyfrannog ar-lein 113 |
Evidence from Online Participant 113 |
Please refer to questions in the Online Survey.
Question |
Answer |
01 |
Yes We support that the definition should be linked to the WHO definition. However, we remain concerned at the potential unintended consequence of taking support away from other neurodevelopmental disorders, and believe it is important that the Welsh Government is able to broaden the definition. |
02 |
Yes We believe this approach is necessary to enhance flexibility. |
03 |
Yes |
04 |
No |
05 |
Support |
06 |
Support |
07 |
Support |
08 |
There needs to be mechanisms for support to occur, while a person is waiting for a diagnosis based on need, rather than depending on a diagnosis. This may include additional support for schools or extra help with care. |
09 |
Yes Assessment should be linked to needs rather than based on a diagnosis. There should be assessments based on need prior to this and additional support for schools and carers , which is based on need rather than a diagnosis while the person is waiting for a diagnosis and this support should continue based on need even if there is no diagnosis of autism. |
10 |
Yes This list should not be exclusive and it should be specified that it should be done by a Multi Disciplinary Team |
11 |
Paediatrician Educational Psychologist Specialist learning disability nurse |
12 |
Physical disability Sensory impairment including visual or hearing loss. |
13 |
Yes |
14 |
Support that is set up initially How long it took to set it up What support could not be provided that was advised How patient / family / carer felt about the support |
15 |
It should be written in the guidance. This enables it to be modified and updated more easily |
16 |
Yes LHBs SS Schools and colleges Employees Voluntary organisations |
17 |
It should happen every 3 years. Potentially better impact and linked to review of services |
18 |
Good generally |
19 |
We still have concerns that the emphasis on autism will distract from needs of children and adults who have special needs below the threshold for a diagnosis of autistic spectrum disorder and those with other neurodevelopmental disorders. With regard to |